The data on children with complex needs is unclear and incomplete
A report from the Council for Disabled Children and The True Colours Trust looks into the national data on children with complex needs or life-limiting conditions, and makes some recommendations.
The CDC and The True Colours Trust commissioned this piece of research in order to more fully understand the data that is available, to identify any gaps, and to develop an action plan to drive improvements.
The data shows that the number of children with complex needs or life-limiting conditions has increased significantly over the last ten years; most of these children are educated in special schools. The two main reasons for this are the improved survival rates of pre-term babies, and increased life expectancy for children with complex disabilities.
However, data collection is incomplete and sometimes out of date, which makes it difficult for local and national services to plan to meet the needs of these vulnerable groups.
The report makes 12 recommendations around four key themes: filling the gaps, making better use of data already collected, towards an integrated data picture, and to raise awareness of trends and generate robust local data.
Read the report in full here.
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